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Bone and Joint Decade International
Patient Advocacy Meeting: Putting People First


25 – 26 October 2005, Ottawa, Canada

Topics

Leader

Webstreams

Registration & Coffee

Opening Session

  • Welcome
  • Putting People First in Musculoskeletal Health


Denis Morrice,Canadian BJD Ambassador

Amye Leong, BJD





Making a Difference: Regional Involvement in the Political Agenda

  • How Are Organisations Contributing to BJD?

  • How Do Organisations Involve Patients?

  • How to Influence the Musculoskeltal Political Agenda

  • Panel Discussion

Moderator: Amye Leong

Amye Leong, BJD

Liana Euller-Ziegler, EULAR Social League

Robert Johnstone, ARi






 


Invited Presentations

Presentations by delegates

10 minutes each/ 6 – 7 presentations

Moderator: Ben Horgan

Kenya: Lillian Mwaniki

Philippines: Carina David

USA: Hilary Weldon

Morocco:Thami Benzakour

Slovenia: Dusa Hlade Zore

Norway: Jack Skrolsvik




 

 

 

 

 

Developing National Strategies: Putting People First

The Role of Patient Representatives in Developing National Strategies

India NAN representative

South African NAN representative

Patient Involvement in the New Zealand NAN

Moderator: Ben Horgan

Neil Betteridge, UK

Parasmal Nahar, India

Diana Serrurier, South Africa

Kate Thomson, NZ

 




 




Interactive Sessions

Governmental Relations Skills and Strategies

Media Relations Skills and Strategies


Cheryl Koehn, Canada

Amye Leong, USA

 

 

Putting People First: Strategies for Personal Empowerment

Personal and Family Advocacy and Empowerment – Policy & Practice

Arthritis Self Management Programme

Patient Partner Programme – Concept and Practice

Patient Involvement in Research and Clinical Trials

Patients Raising Awareness through Marketing

Explain breakout sessions

Moderator: Amye Leong

Ben Horgan, Australia

Lena Őhrsvik, Sweden

Iva Coppedé, Brazil

Ann Qualman, Canada

Peter Apatow, US











Breakout Session

Facilitators

Group A: Katalin Dul-Szabone, Hungary

Group B: Hillary Weldon, USA

Group C: Neil Betteridge, UK

Recorder: Charles Harles, USA

Recorder: Hans Aalberts, The Netherlands

Recorder: Kate Thomson, New Zealand

 

Report back on breakout sessions and open discussion

Moderator: Ben Horgan

Group A: Charles Harles

Group B: Hans Aalberts

Group C: Kate Thomson







Recognition Ceremony

Closing Session

Amye L. Leong, BJD

Lars Lidgren, Chair BJD





 



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